Acute Myelogenous Leukemia (AML)
is a fast-growing cancer of the blood and bone marrow. In AML, the bone marrow makes many unformed cells called blasts. Blasts normally develop into white blood cells that fight infection. However, the blasts are abnormal in AML. They do not develop and cannot fight infections. The bone marrow may also make abnormal red blood cells and platelets. The number of abnormal cells (or leukemia cells) grows quickly. They crowd out the normal red blood cells, white blood cells and platelets the body needs.

Wednesday, January 30, 2013

1.30

So during the last few weeks Riley has mentioned a few times that his vision in his right eye has gotten worse and maybe he needed a new prescription for his glasses. 
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To give a little bit of background, Riley wore contacts before his diagnosis (Dec. 2011).   He could not wear contacts during his treatment and in August of 2012 I brought him back to the eye doctor.  He had a great eye check up and was fitted for contacts again. 
Fast forward to about November 2012...  Riley started wearing his glasses more and more and said the contacts were bugging him.  We didn't think much of it, just thought he liked his glasses and needed to get acclimated better with the contacts.
Fast forward now to January 2013 and Riley feels like his right eye needs a better prescription. 
I make an eye appointment for him and as he sits in the chair and is asked to read the letters on the screen ... HE CANNOT.  Like at all! 
 
His left eye is better than his right, but not great.  I sat in a bit of shock.  "What?  You can't see those giant, bold letters?!"
Turns out Riley's eyes are so severely dry that his right cornea is swollen and scratched.
GRAFT VS. HOST of the eye.
As soon as the doctor said "dry", I knew what it was.    
 
 They did several tests and found out for now that the vision loss is not permanent, thankfully.  ... but our doctor is concerned for "holes" to develop on the cornea.  We went home with a prescription steroid eye drop and artificial tears.  Both to be given 4 times a day. 
I asked Riley why he never complained of dry eyes and he said, "I guess I'm just used to it".  He did have severe dry mouth and eyes while going through chemo.  Time just passes and the little improvement he had felt "normal".  ... What is "normal" anyway??
We will be returning for a check up in one week.
 



Monday, January 7, 2013

Another step to normal

Riley went back to school today!! Although he officially went back in mid October, he mostly worked in the library with online school. Today he is a regular student. Teachers and classes and books.
It has been a full year!
I can hardly believe it. Looking back the year has been long and difficult, but somehow fast at the same time.
I think the last couple of months have been good for Riley. Time to adjust back to a real school schedule before diving back into real school. Online school has been a blessing, because it has been his only option. But Riley thrives with student and teacher interaction. He is a great student and I'm thrilled for him to get back to real school life.