Acute Myelogenous Leukemia (AML)
is a fast-growing cancer of the blood and bone marrow. In AML, the bone marrow makes many unformed cells called blasts. Blasts normally develop into white blood cells that fight infection. However, the blasts are abnormal in AML. They do not develop and cannot fight infections. The bone marrow may also make abnormal red blood cells and platelets. The number of abnormal cells (or leukemia cells) grows quickly. They crowd out the normal red blood cells, white blood cells and platelets the body needs.

Sunday, April 15, 2012

Day 125 -- (Day +17)

Sunday.  This is my corner.  I like to keep track of the numbers and see the trends. Maybe a little OCD of me :)  ... It is how I stay "in control".  Since I really have no control over this whole situation, it has been my way to cope.

Really interesting...


                                     (normal 4.5 - 13.5)                     (normal 2,000 - 5,000)
Day                            White blood cell count                           ANC

0 (transplant day)                 2.5                                                2275
+1                                         1.6                                                1376
+2                                           .4                                                  252
+3                                           .2                                                      0
+4                                           .1                                                      0
+5                                        < .1                                                      0
+6                                           .1                                                      0
+7                                           .1                                                      0
+8                                        < .1                                                      0
+9                                           .1                                                      0
+10                                         .1                                                      0
+11                                         .2                                                      0
+12 Engraftment                    .3                                                    72
+13                                         .6                                                  312
+14                                       1.2                                                  648
+15                                       1.8                                                1278
+16                                       2.7                                                2106
+17                                       3.8                                                2660
           

So cool to see the numbers headed in the right direction!  Love that he is close to, or in the "normal range".  Although his numbers are looking normal... the cells that he is developing are just "baby cells".  Unable to protect Riley like a normal immune system should.  It will take time.  The next 6 months are very important.  After he gets off the Cyclosporine (anti rejection medicine), he will be doing better, but still will require wearing a mask in public and staying away from those who are sick.  It will also be late fall and the beginning of cold and flu season.  Just not worth the risk.  Riley will be doing online school next year and continue skyping into church.  The doctors say it is important to get back to life though.  He can go to the movies... but like on a tuesday, in the morning... when no one is there.  :)  It will be interesting to get back into life.  Cautious, but not so completely isolated either. 

Labs today:
White blood cells:  3.8  (normal 4.5 - 13.5)
Red Blood cells:  11.5  (normal 13.5 - 17.5)
Platelets:  48  (normal 150 - 425)
ANC:  2660  ( < 500 = severely neutropenic) (normal 2,000 - 5,000)

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