Monday. Bryant comes with us to clinic appointments. He has to, poor boy. He is so patient and plays the Ipad. He just goes with the flow. His favorite game to play is "Where's my Water?"
Riley's appointments are always at 8:30 A.M. so that the nurse can draw blood for labs BEFORE his 9:00 medicine time. That gives them his cyclosporine level. We then sit and wait for the lab results and then see Dr. Katsanis for a check up. Sometimes Riley's magnesium has been low and he needs a quick infusion or the pantamidine infused. We have gotten pretty good at waiting...
Labs today:
White blood cells: 3.7 (normal 4.5 - 13.5)
Red Blood cells: 12.8 (normal 13.5 - 17.5)
Platelets: 110 (normal 150 - 425)
ANC: 1554 ( < 500 = severely neutropenic) (normal 2,000 - 5,000)

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