He gets reaccessed and blood drawn in the clinic. The nurses are thrilled to see Riley and ask all about his time off. An awesome group came in and set up a "Valentine Boutique" for the patients to pick out gifts for their loved ones. Riley picked out gifts for our family as I unloaded the car. He picked out very thoughtful presents.
We get set up in our room and Dr. Kopp talks to us about the new round.
The test of the clustered cells did not give any new information. The doctor felt fine about that because we are still under the 5%. So remission is remission. yay!
The blood work labs came back and showed incredible recovery!! Our Dr. was very impressed with Riley's ability to bounce back. AWESOME!! Really awesome, ... but hard for me, the mom, to bring my child back to the hospital to be brought back down to the bottom again after trying so hard to recover. I know, I know... if we didn't continue it would just start all over again. That is the beast of this disease. ...
This round will only be 5 days of chemo. It is a heavier hitting dose, but less days. The chemo started at 2pm. There are 2 medicines and they each take an hour to go in. So Riley was finished a little after 4 this afternoon. One of those medicines runs every 12 hours, so he also gets it at 2 in the morning.
When talking to a nurse this morning, Riley compared this upcoming round and then the transplant as -2 long drives-. That's my boy... putting it in football terms.
It has been wonderful to be home and remember what life is really like outside the hospital. To realize that there is a light at the end of this tunnel. But for now... there is work to be done!
Labs today:
White blood cells: 3.9 (normal 4.5 - 13.5)
Red Blood cells: 11 (normal 13.5 - 17.5)
Platelets: 236 (normal 150 - 425)
ANC: 2,145 ( < 500 = severely neutropenic) (normal 2,000-5,000)
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