I noticed I had a message on my phone after church and listened to the message on the drive home. It was Riley's nurse saying that Riley was fine, but that the doctor wanted to have Vince and I both come to the hospital as soon as we could. That is never a good thing. As soon as we got the kids settled at home, we drove right in to the hospital. Our doctor told us that blasts were showing up in his daily blood work. They saw some Saturday but wanted to see what happened today. Blasts were there again today. Riley has relapsed. It is completely NOT expected to relapse once you are in "remission", (when you are still having chemo). The doctor is very surprised, as are we. She really couldn't tell us much more. Riley will have a bone marrow biopsy tomorrow so she can see exactly what is going on in there. It will take 24 hours for the results, so the plan is to start him on another round of chemo on Tuesday. This news hits us very hard because this is the week we expected him to come home... to gather up strength for the transplant.
Our hearts are aching. Riley has done so incredibly well. He has been amazing! I learn from him every day!! We knew we were heading into a tough time with the transplant... but I guess we have another big hurdle to get through first. ...
Aunt Renee and cousin Trent came by last night not knowing what we had just found out. We filled them in. Their timing could not have been more perfect. We had some time to digest this news, then we had a great distraction. Renee brought Uncle Carl's electric guitar! She must have been inspired! Riley was so excited and got right into checking it out. He even found some cool apps to help him learn to play. **Riley is amazing. That is all I have to say.
Labs today:
White blood cells: .9 (normal 4.5 - 13.5)
Red Blood cells: 9.3 (normal 13.5 - 17.5)
Platelets: 57 (normal 150 - 425)
ANC: 0 ( < 500 = severely neutropenic) (normal 2,000 - 5,000)
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