Day 28

Monday. After the tough weekend, the doctors were determined to find "THE" medicine that would work for Riley.  Because of the regular reaction to the Marinol last night, Riley thought he could try it today and see how it goes.  It was a good day.  Riley felt good and ate food.  He asked for 2 Jr. Bacon Cheeseburgers from "Wendy's".  I ran right out and got that for my boy.  The rest of the day was regular.  No weird reactions.  I am so thankful!

We were visited by an organization called "Tu Nidito".  They do wonderful things for kids with serious illnesses.  They have a program called "courage beads".  They start a string of beads for Riley and he adds beads to it according to his story.  Each bead represents something.  His diagnosis, surgery, transfusions, bad days, good days, lost hair, tests, chemo.  It is really cool!  After Riley added the beads for his journey so far, he said, "Wow, look how much I've been through!"  It is a cool visual of his experiences and something he will always cherish!

Riley's hair is driving him a little crazy.  It is falling out in weird patches, getting on his pillow, and it still hurts.   Gina, our nurse today, gave him a good idea... Put soft tape on it and pull it off.  That is just what he did!!

Labs today:

White blood cells: 0.5 (normal 4.5 - 13.5)
Red Blood cells: 9 (normal 13.5 - 17.5)
Platelets: 30 (normal 150 - 425)
ANC:  5 ( < 500 = severely neutropenic)